Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
A guide through the overwhelming process of planning for a family member with special needs throughout their lifetime. Mary Anne Ehlert (CFP) covers building a professional team, navigating guardianship and support decision-making, and finding the best residential, recreational, and day programs.
A guide through the overwhelming process of planning for a family member with special needs throughout their lifetime. Mary Anne Ehlert (CFP) covers building a professional team, navigating guardianship and support decision-making, and finding the best residential, recreational, and day programs.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.
There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.
Connect with other siblings, learn about available resources, hear from experts and discuss plans for long-term care for your sibling with Angelman syndrome.
There is a special relationship between individuals with AS and their siblings. It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
Customize this template to introduce your adult with Angelman syndrome to others they are meeting for the first time.
Customize this template to introduce your adult with Angelman syndrome to others they are meeting for the first time.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
