Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Resources

Medical | Family Support
Document | Printable | Video
Insurance for Individuals with AS

Eric Wright discusses insurance and government benefits, understanding coverage, appealing denials, accessing necessary therapies, and more.

Eric Wright discusses insurance and government benefits, understanding coverage, appealing denials, accessing necessary therapies, and more.

Newly Diagnosed | Family Support
Book
Angelman Syndrome A to Z

Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.

Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.

Download Now

Purchase Paperback

Angelman A to Z is a resource for parents, caregivers, doctors, therapists, teachers and anyone involved in the care of a person with AS. The information comes from tips, anecdotes and discoveries from your experiences. Thank you to all who contributed to the 4th and latest edition that was created in 2020.

Angelman A to Z is created by Alice Evans, mother to Whitney, who is an adult with Angelman syndrome.

Download Now

Purchase Paperback

Newly Diagnosed | Adults | Family Support
Group
ASF Family Champions

Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.

Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.

Newly Diagnosed | Adults | Family Support
Service | Website
California State Agencies & Services

Get help with essential California services.

Get help with essential California services.

Family Support
Website
Chinese Parents Association for the Disabled

Chinese Parents Association for the Disabled (CPAD) is a non-profit organization dedicated to help individuals with special needs and their families (e.g. Autism, Down Syndrome, Cerebral Palsy… etc). All the parent members are volunteers, and strive to help each individual achieve his or her full potential toward a meaningful and productive life, to encourage opportunities of social integration, and social inclusion into mainstream society.

Chinese Parents Association for the Disabled (CPAD) is a non-profit organization dedicated to help individuals with special needs and their families (e.g. Autism, Down Syndrome, Cerebral Palsy… etc). All the parent members are volunteers, and strive to help each individual achieve his or her full potential toward a meaningful and productive life, to encourage opportunities of social integration, and social inclusion into mainstream society.

Family Support
Podcast
Clinical Trials in Angelman Syndrome

In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.

In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.

Family Support
Service
Disability Rights Maine

Disability Rights Maine (DRM) advocates for and with people with disabilities in our state.

DRM acts to change Maine’s schools, workplaces, businesses and public spaces to ensure that people with disabilities are empowered in their choices.

Disability Rights Maine (DRM) advocates for and with people with disabilities in our state.

DRM acts to change Maine’s schools, workplaces, businesses and public spaces to ensure that people with disabilities are empowered in their choices.